Tragic six-year-old boy left looking like a wrinkled pensioner because of rare Benjamin Button-style disease

A SIX-year-old boy already appears to be like like a wrinkled pensioner due to a uncommon genetic illness.

Yernar Alibekov, from Kazakhstan, was identified with a uncommon dysfunction often called Ehlers-Danlos syndromes a month after being born.

Central European Information

Star Wars fan Yernar Alibekov is just six however already appears to be like like an previous man[/caption]

The primary indicators got here proper after he was born with saggy eyelids that left him scratching them on a regular basis.

The boy’s situation has now turn into so dangerous that it left his pores and skin sagging.

Identical to within the movie Curious Case of Benjamin Button, Yernar was trying like an previous man whilst he discovered find out how to stroll.

Mum Zibensa Tulepbergenova mentioned a neighborhood hospital within the metropolis of Astana, the place the household stay, waived their guidelines and agreed to carry out a pores and skin graft operation despite the fact that he was below 18.

Yernar and his mum Zibensa
Central European Information
The six-year-old is playful like all boy of his age
Central European Information
Medical doctors agreed to carry out a pores and skin graft on Yernar in a bid to assist him lead a standard life
Central European Information

The household might have waited to get free surgical procedure, they determined to spend £245 to enhance the standard of lifetime of their son.

The quantity was too excessive for Yernar’s household alone to pay so mates and relations helped out as nicely.

What are the Ehlers-Danlos Syndromes?

EHLERS-DANLOS Syndromes are a gaggle of uncommon, inherited problems which have an effect on the physique's connective tissue.

The dysfunction impacts the physique’s connective tissue which usually gives help within the pores and skin, tendons, ligaments, blood vessels, inner organs and bones.

Relying on the kind of EDS, the defective gene could have been inherited from one mother or father, or each dad and mom.

Some signs are shared between the problems, together with an elevated vary of joint motion (hypermobility), stretchy pores and skin, and fragile pores and skin that cuts and bruises simply.

For some, EDS is a light situation however, for others, their signs could be disabling and in uncommon extreme circumstances life threatening.

The 2 foremost sorts of EDS are the extra frequent Hypermobile EDS (hEDS) and the rarer Classical EDS (cEDS).

Hypermobile EDS is usually considered the identical as or similar to one other situation referred to as joint hypermoblity syndrome.

Classical EDS (cEDS) is much less frequent than hypermobile EDS and tends to have an effect on the pores and skin extra.

Vascular EDS can be uncommon, however it’s the most critical kind – as a result of it impacts the blood vessels and inner organs, and might trigger them to separate open, inflicting life-threatening bleeding.

However consultants are skeptical that the surgical procedure will considerably assist in Yernar’s case.

Physician Olga Loseva mentioned: “This can be a uncommon illness that occurs to at least one in 50,000.

“The truth that the boy had surgical procedure gained’t enhance his pores and skin situation – whether it is saggy it gained’t change.

“The one approach out is to mitigate penalties of this illness and take nice care of him.”

Ehlers-Dalos syndromes can result in such problems as osteoarthritis, scoliosis, power ache and joint dislocation.


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